International Open Access Journal Platform

拥有“星星”孩子的家庭要多坚韧——自闭症儿童家庭抗逆力的现状和对策研究

The Resilience of Families with “Star” Children: A Study on the Current Situation and Countermeasures of Family Resilience of Children with Autism

杨小梅¹, 李佳¹², 谢思璇¹, 宁宇婷¹, 秦曦晨¹, 陈俊¹

Progress in Social Sciences / 2026,8(5): 406-412 / 2026-05-26 30 24

View Download PDF

• Information:

  1. 长沙师范学院学前教育学院，长沙；
  2. 北京师范大学心理学部，北京

• Keywords:
  Autism spectrum disorder; Family resilience; Social support
  自闭症谱系障碍; 家庭抗逆力; 社会支持
• Abstract: To explore the current status, influencing factors, and weak links of family resilience among families of children with autism spectrum disorder (ASD) in China, this study conducted a questionnaire survey among 227 primary caregivers of children with ASD. Independent samples t-test, analysis of variance (ANOVA), correlation analysis, and multiple linear regression were used for in-depth analysis. The results showed that the level of family resilience among the surveyed families (128.36±16.87) was at an upper-middle level. Among the dimensions, family communication and problem-solving scored the highest, while utilization of socioeconomic resources, maintenance of positive attitudes, and meaning-making of adversity were identified as weak links. Caregivers generally experienced high caregiving stress and impaired physical and mental functioning; social support was at a moderate level but with insufficient conversion efficiency. Further multiple linear regression analysis indicated that maternal age at childbirth, rehabilitation expenditure, and maternal educational level had significant effects on family resilience. After controlling for other variables, fathers had significantly lower family resilience scores than mothers. Based on these findings, this study proposes constructing a collaborative system of “internal resilience enhancement + external support improvement.” Strategies such as community linkage, targeted tiered support, and telehealth services can be adopted to improve family adaptation, providing empirical evidence for the optimization of support policies and social services for families of children with special needs. 为探究我国自闭症儿童家庭抗逆力的现状、影响因素及薄弱环节，本研究对227名自闭症儿童主要照顾者进行问卷调查，采用独立样本t检验、方差分析、相关分析与多元线性回归等方法进行深入剖析。研究发现，受访家庭抗逆力水平（128.36±16.87）处于中等偏上水平，其中家庭沟通与问题解决维度得分最高，社会经济资源利用、积极态度维持、逆境意义赋予维度为短板；照料者普遍存在较高照护压力与身心功能损害，社会支持处于中等水平但转化效率不足。进一步的多元线性回归分析表明，母亲生育年龄、康复支出、母亲受教育程度对家庭抗逆力有显著影响，控制其他变量后父亲家庭抗逆力得分显著低于母亲。基于此，本研究建议构建“内部韧性提升＋外部支持完善”的协同体系，通过社区联动、精准分层支持、远程诊疗等策略改善家庭适应状态，为特殊儿童家庭支持政策与社会服务优化提供实证依据。
• DOI: 10.35534/pss.0805071 (registering DOI)
• Cite: 杨小梅，李佳，谢思璇，等．拥有“星星”孩子的家庭要多坚韧——自闭症儿童家庭抗逆力的现状和对策研究［J］．社会科学进展，2026，8（5）：406-412.